Abstract:
Background: Cancer in children in Tanzania is a concerning health issue, yet there is a
shortage of information about the experiences of the guardians of children who receive
cancer treatment. Objective: To explore concerns and needs of support among
guardians of children on cancer treatment in Dar es Salaam, Tanzania. Method: Using
a qualitative design, 3 focus group discussions were held with 22 guardians of children
aged 9 to 17 years. Guardians were recruited from Muhimbili National Hospital, Dar es
Salaam, where their children were receiving cancer treatment. Data were analyzed using
thematic content analysis. Results: Guardians experienced several issues during the
initial stages of their child’s cancer treatment, including the process of seeking a
diagnosis, and experiences with care at the peripheral (regional) hospitals and national
hospital. They also shared what they felt would lessen their difficult experiences. Seven
themes emerged in this study: financial concerns, emotional concerns, barriers to cancer
care, need for improved cancer care, need for information, need for tangible support,
and gratitude and hope. Conclusion: Guardians of children with cancer experience
challenges during initial stages when seeking a diagnosis and have concerns and needs
related to cancer care and treatment. Implications for practice: Improvements are
needed regarding care at regional hospitals, the cancer diagnosis, and the recognition of
early signs of cancer and quick referral to diagnostic centers, compassionate caring
behaviors by healthcare workers, budgetary support from the government to meet the
medication supply demands, and meeting stakeholders’ support needs.
