Patients’ participation in their medical care and decision making at ocean road cancer institute

Abstract

Background Participation of patients in decision making is an ethical, legal and regulatory procedure, in medical care. Informed decision is accepted. In this process patients need to be informed about risks, benefits, and alternatives of the treatment intervention. Objectives The objective of the study was to explore the involvement of patients in their medical care and decision-making at Ocean Road Cancer Institute. Methodology The study used qualitative research method, where in-depth interview was employed. The study informants were cancer patients and doctors from Ocean Road Cancer Institute. The interviews were captured using a tape recorder. The recorded discussions were transcribed, and analyzed using thematic content analysis with the help of NVivo software. Findings The study found most patients indicated preference to be involved in their medical care and decision making. Face to face method was mostly employed. The provided information was inadequate. There was poor awareness about patient’s involvement. Little application of informed consent during involvement, and patients need not wanted to make decision. Conclusion Due to participant’s explanations about patient’s participation in their medical and decision making, the study finding revealed that patients were not well involved as required by ethical principles, and also as it is directed by World Health Organization. This is due to the used decision method during provision of information, and other challenges relating to the involvement process. Among other, the involvement process, could be facilitated by management of Ocean Road Cancer Institute as well the entire Ministry of Health to take initiatives on making sure patients and all citizens are aware on their medical rights.